Born: November 23, 2004
Illness: Epilepsy, microcephapely, suspected genetic syndrome, but after exhaustive testing, none detected. Globally delayed, no speach.
Quilt Deadline: September 1, 2008
Theme of Quilt: Horses - Lucia rides horses as part of her therapy, she gets excited when she sees real horses, but her mom said that she thinks that horses such as carousal horses would be fine. No real cartoon horses, but elegant horses and real horses are fine. If you use a pattern that is a unicorn please take the horn off. Thanks!
The following interests are mainly to help you get to know the child better.
You may use what you can towards the theme of the quilt, but make sure that
you stitch within the theme.
Lucia's interests are: Lucy Loves her horse therapy!! Because of her global delay, she is cognitively about at a one-year old level. She has not indicated a color preference. Anything girly or something that goes with horses. Lucia lives in KS.
Click here to see the squares for Lucia as they come in for her! (Please keep in mind that her quilt wasn't opened to stitchers until June 2008)
Biography
Lucy was born on November 23, 2004, on a beautiful rainy and snowy night. We had so wanted to give our older daughter a sibling, and had been so thrilled to find out we were pregnant with Lucy in March of 2004. Just seven weeks after finding out about my pregnancy, I found out my very best friend, my mother, had terminal cancer and had only 4 months remaining. I cared for her at home until her death in September of 2004. During that time, we found out that we were having a girl. We wanted my mother to know before her death and share in our joy. The birth was beautiful, natural, and very fast. It could not have been better. Lucy was right on time, but definitely wasting no time getting here.
Even though to us she seemed beautiful and perfect, we were told she was microcephalic and were warned that it was sometimes linked with developmental delay. She was, however, well-proportioned, and her APGAR scores were great, so doctors were not too concerned. Months following her birth, we slowly noticed she was not reaching her milestones, it was blamed on her small stature, a "wait and watch" attitude was encouraged. At 13 months she had her first seizure in connection with RSV and pneumonia. She was placed in PICU where we were told she was the sickest person in the hospital and we nearly lost her three times. The seizure was blamed on the infection and an autoimmune response that her pancreas had to the infection. She was placed on phenobarbitol and we were told she would remain on that for six months and if she remained seizure-free, she would be weaned from the medication. After a month in PICU, we returned home to begin intensive speech, PT, and OT therapies, since her delays could no longer be ignored. After six months and no seizures, we began the weaning process off phenobarb, and she had her second seizure, this time with a bladder infection.
Since that time, the seizures have been numerous, with infection. Ear tubes have been put in to prevent ear infection, specialists consulted with regarding the frequent bladder infections. Everytime Lucy is sick, seizures are present. We have sought the expert advise of Mayo Clinic and are presently under their care. We are told Lucy will likey suffer with seizures her entire life. She is currently functioning at approximatly the skill level of that of a one-year old. She is approximately the same size as well, only weighing 22lbs at three and a half years old.
Despite all her struggles, the medications, the doctor appointments, Lucy is PURE JOY. She loves to cuddle, loves pat-a-cake, absolutely loves to ride her horse. She always finds something to smile about. She is a true blessing to us and I am just so honored to be her mother.
Written by Lucia's mom in May 2008
June, 2008 - Changes have been made to the confirmation of patterns. I will keep each pattern listing as updated as I can but I will no longer be confirming or denying a pattern. If you find that your pattern is a duplicate and you are still in the position to make a change please email me your new pattern choice so the list stays current. I hope this change helps everyone!
Please see the following page before making your pattern selection for Lucia. It is a listing of her current patterns that are being stitched already.
